Thursday Update

Jon had 2 MD appt's this week. He saw the Infectious Disease MD on tues, where it was decided he could come off his IV antibiotics. He will be continuing on oral antibiotics for awhile, but at least we won't have to wake up a midnight anymore. His labs were drawn at home also that day, and his liver function tests are much better. His Alk Phos is half of what it was while he was hospitalized (it is now 597). Today we went to see the pain MD. Jon has had more pain issues again later in the day lately. He has pain in his abdominal region radiating to his back. The MD said he probably has some nerve involvement, that nerves run across your abdomen like a girdle. The MD increased his oral pain meds, which seems to be the only med that really seems to take some of the pain away. We are hoping to see this change work soon. It has been nice to get outside with Campbell the last couple days. She was soooooo excited to go to the park yesterday. She was running around climbing, going through tunnels and down the slides with a huge smile. It is always a joy to watch her experience things more independently.